GANGSTA BEES AND BEDSORES

Gangsta Bee

I was going to write an intro for this post, but I think this post speaks for itself and needs no preface. Those people who have read my blog in the past will know to wade through the initial bullshit to come to an understanding regarding the purpose of my post. When two old friends chat online (this friendship I refer to goes back 50+ years), they don't need to make any sense. In fact, they rarely make any sense and that's the beauty of their *symbiotic relationship*.  And because I'm such a sweetheart, I'll even post the definition of a symbiotic relationship for those who don't know what it is right off the top of their head. Feel honored that I share with you the beast that tickles my fancy. It's called chain yanking and witty banter! It doesn't get any better than that in my book!

Symbiotic relationships are a special type of interaction between species. Sometimes beneficial, sometimes harmful, these relationships are essential to many organisms and ecosystems, and they provide a balance that can only be achieved by working together.

The cast of characters:
J - a close female friend and partner in crime since my unruly days of yesteryear
M - my BFF and a person who is all the things I'm not and that's why we gel
E - some random dude that's a friend of J
K - yours truly

"J", started my engine by posting the following video on her Facebook page with her sincere commentary stating that WE ARE THE WORST SPECIES ON THE PLANET!!!! (yes, it was in caps so it jumped out and screamed at me to yank her chain a little.) "E" who enters into the mix towards the end of the chat is "J's" Facebook sparring partner. Since they became Facebook friends, I don't think they've ever agreed on anything. Another symbiotic relationship in the making, but not nearly as deeply rooted as mine is with "J."

K: Worse than cockroaches or bed bugs?

J:  much worse, look at that disgusting

K: Hey, I'm a gangsta bee so my species is okay 🐝🐝 Look, there you are with me. We're just buzzing around and doing gangsta bee stuff.

J: K,  you're nuts! lol

K: J, Did you leave off "piece of shit" from your previous statement?

J: ya, I guess I did. You want me to add it now?

K:  Some things never change. Crazy as a loon and I don't care what anyone thinks of me. Hey, if M, drops by here tell her you haven't seen me but you heard me buzzing.

K: J, please leave it as is

J: K, yes ma’am...I can do that buzzzzzzzzzzzzzzzzzzz

K: Hey, is it okay if I tell people you said I'm worse than a cockroach or a bedbug?

J: I’d be honored...

K: I'm a free to be me GANGSTA BEE 🐝

J:  whatever floats your boat. lol

K: J, bees don't have boats, they have hives

J:  well, then whatever floats your hive

K: I got honey in my hive

J: no comment

K: I got honey in my hive and it's good to be alive

K: Gangsta bees rhyme like a dime in a crime

K: And what is the crime?

J: littering

K: swarming, swarming, global warming

J:  that too. lol

K: Litter is for quitters

K: And to think I'm like this naturally. That’s scary!

J: K, that's right, spread the word as you buzz along

K: Now, buzz off, right?

J: K, I know, but if anyone can spread the word, it's you

J:  But please spread it in a nice way

K: I'll spread my honey on my buns because honeybuns are fun, fun, fun…

J:  that explains it.

K: I think I'll copy and paste this masterpiece to my blog

J:  I think you should and give me ample prompts

K: This lovely chat we've had and a picture of the decubitus on my ass should keep everyone happy for a while. And of course, I’ll give credit where credit is due.

J:  The what on your ass!!??

K: Since it's glaringly apparent that you don't know how to use Google...a bed sore, an open ulcer on my arse... want to see?

J: naw, I’ll pass. Hope it's better soon

K: and I'm losing my hair, but it's all good because gangsta bees don't need no hair.

K: Losing the hair on my head...not on my ass

J:  I can relate to that one. Nope, gangsta bees don't need no stinking hair

K: I had debated posting the pic for my profile pic on Facebook, but the verdict is still out on that one

K: What's next? Shall we talk about our bowel movements or the virtues of menopause?

J:  Do what makes you happy!

J: Only if you make me talk about that crap (pun intended)

K: Did you know years ago I posted my colonoscopy pictures on Facebook?

J:  cool...bet you got a lot of comments

K: I sure did...it would have freaked people out if I posted my prostate pics

J:  ah, I didn't think women have a prostate

K: Prostate? Fooled you! Gangsta bees come well equipped, so when people tell me to go fuck myself, I can do exactly that. No problemo!

J:  wow, glad I’m not a gangsta bee

K: That's what BOB is for? Who's BOB, right?

K: BOB is not a bee, but BOB buzzes like a bashful bee. BOB is a battery-operated buddy BTW

J:  The honey's gone to your head

K: Uh oh! We have company! I had better behave myself (you know how well that usually works out)

E: Yea, it was all good until we discovered words like: disposable, no deposit/no return, plastic, Styrofoam, bic lighters, disposable bags, razors, diapers, throw it away not caring where it goes...

K: What about words like GANGSTA BEES?

K: Hi Ed!

K: Hey Ed, J said I'm worse than a cockroach or a bedbug. I don't think she loves me anymore.

J: K, you tell him! lol

K: What am I gonna do? I guess I'll retreat to my hive and lick my wounds.

J: K, good luck with that. I can't stretch my neck far enough to do that

K:  I don't think Ed needs to be told anything by me...you seem to have that nicely covered.

K:  I said lick my wounds, not lick my ass!

J: isn't that where your wound is?

K: They say a picture a picture is worth a thousand words. Okay, I'm off to the next hive now. You two play nicely or else, I'll be back, and you know what that means! Shock collars for everyone!

J:  [sigh]...have fun

K: Oh J, you weren't supposed to tell him where my wound is. Now, I'm embarrassed. Instead of being yellow and black like a good gangsta bee, I'm red and black. I’m a mess!

K: Good night  ❤️

J: K, red and black looks good on ya 😈

K: 🐝🐝🐝🐝🐝🐝🐝🐝🐝🐝🐝🐝🐝

I bet you thought you were viewing the
surface of the moon. Well folks,
this is my "moon" and  it has Hairy Ass Rot!

My Gangsta Bees look like fucking termites. Oh well! It's the thought that counts and on that note as promised threatened, here's a picture of my lovely ass rot! 

Wow! I have hair on my ass! Where the hell did that come from? I guess that's what old women are suppossed to do. [They don't hand out booklets about the finer points of growing old, so I'm pretty clueless as what to expect] As our locks grow thin, hair starts to sprout everywhere it shouldn't...faces and asses are a favorite spot. How charming is that picture? 

Tell me, how is one supposed to age gracefully when you have hairy ass rot going on? I can hardly wait for the next thing to short circuit or fall apart. Perhaps my mind will go next and then I simply wont care what I look like or how I feel.

THE COOKIE JARS

My cookie jars do not have cookies in them. My cookie jars have cannabis in them. The back row are Sativa (Green Crack, Super Silver Haze, Jack Herer) Indica (Zkittlez, Granddaddy Purple, Puck Yeah, Master Kush) and Hybrid (Sherbert, Chemdawg, Original Glue, SFV OG, Surfin' in a Hurricane) jars and the small front jars are holding a mixture of strains from VidaCann: TK 91, Kush Cake, Ghost Toast, Eran Almog and Alaska.

PACE WITH GRACE

"Pace with grace" keeps going through my head on what seems like an infinite loop.  First, how does one pace with grace? Is there some specialized step to make it graceful or is it just a matter of attitude and like a person who struts their stuff, they can pace with grace like a fine sashay. Second, how do I get rid of this continuous loop? I'm afraid I'll replace it with something far worse.  Earlier in the week I couldn't get the song Big Yellow Taxi out of my head and now I'm pacing with grace...

I went to my yo yo inspector today (Wednesday) as a walk-in and I was pleasantly surprised that I didn't have to wait all day to see her, but I can't say I was satisfied with the outcome.  I definitely need to figure out what's triggering all this anxiety and then find some way to make it dissipate without the use of all these pharmaceuticals. 

So far I haven't been able to find some middle ground...either I take no meds and pace with grace or I take the meds I was prescribed to take and feel zonked all the time. My anxiety level drops, but all I want to do is isolate myself and sleep. My only hope is that my body will adjust to the meds after taking them for awhile and I won't be a zombie anymore.  How I want my mojo to come back like a welcomed old, trusted friend and for me not to be caught up on this anxiety merry go round.  

I completed my last painting on 5/25/16 and now, have no interest in painting again because all I want to do is sleep. I'm wondering if I'll go a whole year again without painting, without writing, without doing much of anything. I guess time will tell. It always does!

P.S. The loop is gone and the pacing has subsided, but all is much too quiet on the home front... 

A GENERATION OF FREAKS AND GEEKS

I think back to the days of growing up in the "hood" when children interacted with each other.  We spent our youth by playing hide and seek, kickball, dodge ball, tag, hopscotch, jump rope, four square, and many other games like marbles, jacks, Quaker's meeting and when it rained we got on the telephone and organized a place to play board games at someone's house for the afternoon. On days when the girl's did their thing, we played with Barbie dolls while the boys did who knows what! The thought of being cooped up in the house alone only happened when we were sick or on restriction. Regardless of the weather, we wanted to be outside with each other.  When it was cold and snowing, we rode our sleds and ice skated and when it was summer we went to the public pool and found stuff to do outside in the sun. 

I often wonder why and when exactly those days stopped and the isolation began. Was it a gradual change or did it happen overnight? I often wonder how the decline in the sale of board games matches up to the rise in sales of electronic games. Is there a direct correlation between the two? I guess as electronics took root, children's attention and focus turned from each other and towards a world of imaginary creatures where one didn't have to go looking for an adventure because the adventure came to you at the flip of a switch. I often wonder why parents allowed electronic gadgets to become a babysitter, a friend and an entertainer. What we learned as children about teamwork, dispute resolution and organizational skills dwindled away and was replaced by the solitude a child now finds comfort in.  It seems children no longer play outside and I hear adults claim it's because it's so unsafe to be outside.  Has allowing children's lives to change so drastically created a generation of socially awkward human beings who have social anxiety issues? Have we given children an easy excuse to be clumsy, couch potatoes?
 
I won't dispute the safety factor, but I do know there is safety in numbers and being so isolated stunts a child's social development and skills. How can a child learn how to properly interact with others if doing so is never encouraged?  Has it become easier for parents to just buy the newest electronics for their children instead of insisting they spend time outside playing games with their friends or would doing that brand the child as being the neighborhood outcast? Play outside? What's that all about? Who would trust someone who plays outside and has fun doing it?  Have we raised a generation of freaks and geeks who are addicted to electronic crack?

I LOVE MY MIDDLE FINGER

I've recently returned to writing and painting. I think both things are positive outlets for all this pent up anxiety I'm feeling and it sure beats pacing and doing tedious housework all the time.  I can't say I'm a master at either craft, but I guess I do well enough to form a sentence or two in order to construct an idea to elaborate on or as I like to call it, rambling... My skill at painting is acceptable and I have to admit I'm my own worse critic.  The following is the piece I finished today. I never name my pieces because I like for them to be whatever the viewer wants them to be, thus no name, just a number. My signature, Van Goggins was given to me by my closest friend.  She named me after Van Gogh. Van is not my first name, but Goggins is my maiden name I don't know what Van Gogh's diagnosis was, but I rather like the fact that he was "special" and special people need to stick together!

When I started painting this picture I wanted to include the cancer I have on my middle finger, but figured that might be a little over the top.  Besides how does one abstractly depict cancer? Of all places to have cancer, I have to have it on my middle finger.  While they tell me it's not a terminal type of cancer, it's cancer and no cancer is good. And yes, it makes me anxious especially since I have to wait another month to get in to see a specialist to have it removed. 

I keep envisioning my middle finger rotting off and the thought of that doesn't bring me joy.  I'm partial to my middle finger...some of my best angry moments involved using it to signal to someone that they had gotten under my skin. Now, it seems the only thing under my skin is cancer.  I've been fighting the urge to do my own surgery, but I have a feeling that would only make it worse.  When this first appeared on my finger over 12 weeks ago, I assumed it was a possible spider bite. 


I tried on three separate occasions to get my primary care doctor to look at it, but she wouldn't even come near it. WTF? I know it's not pretty, but put some latex gloves on and come over here and look at it. NOPE! She blew my mind by how she acted.  I know we all have bad days, but when a doctor has a bad day that means mistakes are going to be made! What I finally ended up doing was getting a new primary care who solved the problem in a matter of minutes. He nixed the notion that it was a spider/insect bite because there was no drainage or infection associated with it. I know it looks sore and it is sore,when I bump it. The question of the day is how many times do I bump it in a 24 hour period and how many shining expletives do I say per bump? 

P.S. I noticed a few days ago it's starting to grow hair from it.  Great! A hairy cancerous finger! What more can one ask for?

WITH A LITTLE HELP FROM MY FRIENDS

When I was younger I had no worries.  I did as I pleased when it pleased me.  I always thought I'd be one of those cool old hippies as I aged. It makes me smile thinking about being laid back with a live and let live philosophy.  I guess for the most part I fit that description, but last year something happened to me.  I can't really explain it because I don't understand it.  It's like something short-circuited and made me a little crazy.

I started having panic attacks and they got so frequent and debilitating that I had to be hospitalized.   I do know one thing and that's that I never want to go back there again. It's just not a warm, fuzzy place to hang your hat in a time of emotional need. So regardless, of how bad things may get, I'll find some solution that doesn't include being someplace where I feel like I'm one of the herd. While I was there, I didn't see any people get the help they needed because the atmosphere promoted "let's get the hell out of here as soon as possible" instead of "I need to stay here and fix what needs to be fixed.  And when you get right down to the reality of the situation the doctors and patients have no real say on the length of any given admission thus making it extremely difficult for any doctor to do their job. 

It's the insurance companies that dictate what care you get and how long you get it.  While I was there I talked to several other patients who were visibly upset with their doctor for discharging them when they didn't feel like they were ready to go home. The attitude they had bred distrust and contempt towards anyone who was there to help them. The huddled masses sat bitching about the doctor and what an ogre she was. She didn't listen and didn't care...blah, blah, blah. I could see how detrimental that way of thinking was and like the stand up kind of person I am I started talking to the people who were upset and explained it wasn't their doctor who was making the decisions it was the insurance companies.  Once I explained how insurance works (I was a insurance billing specialist for several years) and that regardless of what you get admitted to the hospital for the insurance companies set how many days you can stay for that thing. Insurance companies don't see you as an individual, but as a bottom line and they want to pay the least amount for your health care they possibly can.

It's the reason so many people turn around and come right back to the hospital. Gall bladder removal? It's an outpatient procedure now...you go home the same day as the surgery regardless of how you feel. Now, you may have to turn around and go to the ER later that day because you have developed a complication.  With mental health issues, it's worse... Try to imagine someone who really isn't ready to go home because they're in the throes of a major depressive episode. They must feel helpless being forced to go back to the same surroundings that many times is unhealthy and lacks a support system for the person. Fragile people don't do well without structure and support.  For them, it's easy to turn their frustration and anger on the doctor...after all, it makes sense. The doctor doesn't care. Right? The doctor and the nurses are easy targets!

So that person with depression is started on an antidepressant and probably an antianxiety med as well just for good measure, but the kicker is that the meds don't start working for 4 to 6 weeks after starting them. What's that person supposed to do in the meantime? Twiddle their thumbs and sing Kumbaya? Nope...go home and tough it out. Just remember not to get too vocal or else you'll land up in a locked room on suicide watch. The key to success is to stay calm and learn the ropes so you don't rock the boat.

After my explanation of what insurance companies can and can't do, it diffused a lot of pent up anger.  I brought the matter up in the next group everyone attended and the response was great.  I could see the frustration start to melt away as people gained a realistic understanding about how the system worked and that they didn't have to be mad at their doctor.  I was as bold to suggest that the social worker incorporate this topic into other groups in the future because many people don't understand how the system works and it stresses them out.  They assume everyone is against them and it's rather difficult trying to reach someone who has built a wall for protection.  I'm sure my suggestion never went any further, but it felt good to help a few people. Hopefully, they'll be in the position someday to pay it forward and help someone else.

P.S. Writing helps even though I tend to ramble at times...

LET GO AND LET IT HAPPEN

Sometimes we have to let go and just let it happen in order to get past the difficult times and ultimately move to the other side where inner peace can be reached.  I know letting go is a frightening thing.  I also know how putting your life in other people's hands or trusting someone else's judgment is equally frightening.  I just spent a few days at a psychiatric facility.  I want to write about that experience and will do so as the words come to me.  I also want to write about the people who were instrumental in helping me through my crisis. 

I'd like to start with thanking an old boyfriend for reaching out to me shortly before I was admitted to Baptist Hospital's Behavioral Medicine Center.  I think it was his words that initially let me know that letting go was the right thing to do.  I had done it many years before at a time when I had retreated into a very dark place.  It was a time he had viewed firsthand. Due to the pain I had suppressed for many years as a child I finally lost my ability to function normally as a teenager.  I eventually found drugs numbed my pain and allowed me to live in a void absent of all feeling-both good and bad. Outwardly, it was a "safe" place to reside, but inwardly I was slowly headed towards total annihilation.  When I finally let go, I came close to dying, but I can honestly say that without letting go back then I would have definitely died at a very young age.  As defiant and hardheaded as I was way back then, on some level I allowed myself to trust people enough to pull me through so I could go on living and eventually learn to thrive.

Most people know my life is pretty much an open book no matter where I am.  I share things that most people try to keep tucked safely away in some dark, cozy closet.  I share things that cause others much angst and shame.  I use Facebook in much the same way as I use my blog only to a lesser degree because most people there don't like to read lengthy updates from people.  Somehow social media seems to have created a population of ADHD-minded people who like to "skim" through their friend's and their family's lives.  They get all the highlights without any real substance most of the time.

Sometimes I post links from my blog on Facebook so that my friends and family (those people who aren't in my everyday life) can remain "with" me.  I learned long ago that shutting people out is a very damaging thing to do and that relationships don't thrive on neglect.  Yes, I have slipped into becoming a hermit in the last 10 years or so, but my hermitude isn't completely void of people.  My problem seems to be that the people I'm closest to live the farthest from me with the exception of my children who live close by.  Through my written words I manage to stay connected to the people in my life who are most important to me and they never lack knowing what's up in Mildred's life.  

About two weeks ago I posted a very lengthy update on Facebook (or at least lengthy for Facebook standards) that clearly let people know I was in emotional crisis and headed towards a place I should avoid.  I ended that Facebook update with what I thought was a little humor, a very "Mildred" thing to do... 

"One last thing...do I get a gold star for the longest Facebook status update?" 

 

I didn't expect anyone to address my question due to the nature of the rest of my update, but I received confirmation from a blast from my past that indeed the update was a little on the lengthy side.  That confirmation also came with many thought-provoking items.  Although relationships can change and people come and go from our lives, some bonds/connections/friendships are meant to last in strange, unexplainable ways. The private messages Wayne sent me brought me to tears for several reasons.  The most important one was that he cared enough about me to reach out to me in my time of need.  For that, I am truly thankful.  Without knowing it his words were the catalyst that opened the floodgates that needed to be opened so I could finally let go and just let it happen in order to get past this difficult time and ultimately move to the other side where inner peace could be reached once again.

WHILE OTHERS SLEEP, I WEEP

Since my asthma attack that landed me in the ER a few weeks ago, I've had ongoing, daily panic attacks.  My mental state has deteriorated and sleeping has become an increasingly difficult task. In the past my bouts of insomnia always seem to cycle themselves out, but this time it seems stuck on high gear with no end in sight. I keep asking myself where did these panic attacks come from. I've never had them in the past and why I'm dwelling on death.  It never bothered me before and now I can't seem to escape its clutches. These panic attack seem to come out of the blue with no apparent trigger and when they hit, I lose all ability to calm myself down or to think rationally.  My thoughts are completely focused on the panic attack like an obsession...it's as if I'm wearing blinders and what I see is a very narrow, scary view of life.  I weep, shake and pace.  I'm overwhelmed with the fear of losing control and slipping away forever in some psychotic world. I am, however, one of the fortunate ones because I have people who love me and who will help me regardless of what that help entails.  I know it's no fun sitting with me in ER's at all hours of the day and night and at doctor's offices.  By the way, why don't any doctor's offices have comfortable chairs or better reading material?  I try very hard to keep telling myself that I'm not being a burden to anyone.  My family loves me and wants to see me get well, but it's hard not to listen to all the negative dialog going on inside my head.  I wish I had an on/off switch and since I don't I'm at the mercy of going through some rather agonizing episodes of negativity.


In the last few weeks I've learned many things...most of them are things I'd rather have been kept in the dark about than to have learned them through first hand experience. 

1. It seems anything regarding mental health facilities are a huge clusterfuck.  Shouldn't it be organized and welcoming to set the patients minds at ease? Yet the places seem oppressive and upon entering it sucks the life from you.  Everything seems so sterile right down to the color schemes and layout of the rooms. Everything about it screams, "RUN!"
2. People using mental health facilities are scared, anxious and filled with many negative things and need friendly, helpful people working at the facility they use.  While Nurse Ratched was an integral part to the One Flew Over The Cuckoos Nest story, she has no place in real life and shouldn't be working at any place involving mental illness.   
3. People using mental health facilities too easily lose their "human" status as soon as they become a patient. Why is suffering from a mental illness any different than suffering from a physical illness? The difference I believe is in the eyes and attitude of the beholder and of the caretakers.
4. Because mental illness carries such a stigma, it's easy to become just a diagnosis, a case number and nothing more.  People too easily lose their identity and become a page from the DSM-V.  Too many mentally ill people have lost their ability to fight or stand up for themselves.  When I look at myself I don't see the person I was 20 years ago...a person who had wind in her sails and was going places. 
5. Regardless of what mental state a person is in, unless they have a specific, detailed plan for suicide, the person will be sent home and referred back to their primary care doctor who in turn is supposed to refer them to a psychiatrist. The process for help is way too long and complicated!
6. Help for someone in crisis is not immediate and because it isn't immediate it makes holding on all the harder.  It makes having faith in the system nonexistent. 
7. It's difficult to believe and trust others especially strangers who don't seem sincerely interested in your welfare.
8. Things that happened 40 years ago can seem like they just happened. Grief, fear and pain comes in waves and sometimes those waves are like a tsunami.
9. While primary care doctors are good at what they do, treating mental issues is not their forte and they seem to be clueless as to what the person really needs and how to help them.
10. Public mental health facilities run by state or county agencies usually are a scene right out of One Flew Over The Cuckoos Nest.  At best, my first impression was dismal and scary and I really did keep looking for Mildred Ratched until I found her. 
11. It's very easy to feel like one of the cows being herded through a system that seems surreal at best. I kept finding myself wanting to "Moo"....really!
12. Keeping a medication diary has been a blessing for me.  It's the only way I've been able to keep track of what meds I take and when I take them. Simple tasks have become confusing and meaningless for the most part.  I'm afraid it would be too easy to take an accidental overdose because I can't think straight most of the time.
13. If you're able to find something that helps calm you down, regardless of what it is, go with it and use it...self-help sometimes is a person's strongest ally.  For me and I know this probably makes no sense, my son takes me for a drive when I'm having a panic attack.  Somehow the combination of that and an Ativan helps. 
14. I've denied, ignored and covered up being depressed for years until it's gotten to the point of me losing the ability to function normally and do daily tasks like brush my hair, get dressed, go outside (I have to force myself to go places), take a shower and interact with people face to face in a meaningful way.  I've become a hermit because it feels safe being a hermit, but I hate being a hermit because it's not who I am.

It's daylight now...it's time to go take more meds and let the dogs out.  At least they like going outside.  Maybe I need to become a dog so I can feel normal once again. 

I CAN'T BREATHE!

When dealing with a chronic illness or illnesses, that condition slowly becomes a person's entire life and effects everything a person does and doesn't do.  Sadly, it's how you identify yourself because all the other parts even the outstanding, wonderful parts seem to dwarf in its presence.  Since 2002, my list of illnesses has grown immensely.  It's as if my body and its functions have been kidnapped and ransacked by some perverse domino effect.  I jokingly tell people that I've inherited all the worst genes from both sides of my family, but the truth is that it isn't a joke at all.

A few years ago after a returning from a trip to Central America, I came down with the swine flu.  It was at a time when the flu was just gaining momentum and was in the news everywhere.  The swine flu itself wasn't that bad, but it left me with a cough so bad that it hung on for 3 months after all the other flu symptoms subsided.  After countless rounds of ineffective antibiotics, I was finally diagnosed with adult onset asthma.  I was told that sometimes a virus like the flu will bring on asthma in an adult.  Although I was relieved to find out what was wrong with me, struggling to breathe on a regular basis wasn't something I wanted to deal with, but I have to admit it was better than thinking I had something far worse than asthma.  During my 3 month fiasco, I had many breathing treatments because the cough I had was so bad at times I couldn't catch my breath.  It felt like I was trying to cough up a lung and because the cough was so severe I even broke a rib from the strain coughing put on my chest.  When this episode finally passed, I rarely had to use my inhalers and I got to the point that I questioned if my diagnosis had been accurate.

I questioned that diagnosis right up until Tuesday night.  I had gone upstairs to get ready for bed which included taking all my nighttime meds.  Shortly after doing my normal routine, I started feeling a tightness around my mid-section.  That tightness increased and as it increased my breathing became more labored.  My son and I scurried to find my inhalers.  Oh my God, (not an OMG, but a full blown OH MY GOD) where had I put them?  It had been so long since the last time I had to use them.  I religiously to carried them in my purse, but I had failed to put them in my new purse when I had bought it a few months earlier.  Thank goodness, I had unopened ones in my nightstand.  By this time, I was in a full blown panic and I was really struggling to breathe, but the 2 inhalers (Symbicort and Pro Air) didn't seem to be do anything to relive my symptoms.

It became obvious that I needed medical attention because nothing I did was helping.  As I struggled to breathe, the anxiety I felt deepened.  I had lost all ability to calm myself down.  My son finally made the decision to call 911 and by the time the EMT's arrived my heart rate was over 130 and my vision had stars in it...I'm assuming that was from lack of oxygen.  But regardless of my condition, I was unable to sit down or lay down.  All I could do was pace and walk in circles while talking and flapping my arms so nothing could get close to me.  I insisted that I walk to the ambulance because laying on a gurney seemed to be an impossible task to accomplish.  Once inside I felt trapped, but the EMT's were versed in how to deal with difficult people making little to no sense. 

They convinced me to at least sit on the gurney while they examined me, hooked me up to oxygen and started an IV.  Before reaching the ER, I received a breathing treatment which helped open everything up and improved my oxygen levels. By the time I reached the ER, I had both feet on the gurney and although I couldn't lay flat and relax, I had lost that overwhelming need to pace and act like a crazy person.  As my anxiety started to subsided, the albuterol left me wired up and dried out so I still was having trouble relaxing.  After being released from the ER in a stable condition and being told I had most likely experienced an asthma attack and a panic attack on top of it, I was left with the difficult task of winding down enough to go to sleep for the remainder of the night.  One might think after all I had been through, I'd be totally worn out and ready to sleep, but you see, leading up to this attack I hadn't slept for over 2 nights.  Insomnia and I have a quite intimate, ongoing abusive relationship.  It's not one that I like or want, but like any person in an abusive relationship, it's a situation I feel trapped in without any clear way out. 

I stayed awake until sometime into the next day when I just couldn't keep my eyes open any longer.  Since then I've struggled with sleeping, eating and staying calm.  I have to admit I'm frightened a lot of the time and start to feel anxious, but one good thing has come from this experience and that's that it's left me more in-tuned to what my body is trying to tell me. In the past, I have continually ignored all the indicators that I was doing things the wrong way.  Just call me stubborn, foolish and hard-headed! Because I have to push myself to eat now, my blood sugar has been better than it has been in awhile.  Also, actually sleeping has helped bring my blood sugar down.  Most people don't realize that many factors effect a person's blood sugar. Yes, a proper diet is essential, but stress, sleep, exercise, medications and other factors effect a person's blood sugar as well.  The trick is to get everything in harmony so your body can function normally.  Although the "N" word is normally negative, NORMAL in regards to body functions is a good thing and in this area normalcy is something I need to strive harder to obtain.  With that said, it's 9:03pm and I'm going to get ready for bed. Let the sheep counting begin...

IS IGNORANCE REALLY BLISS?

I was just thinking about how quickly so many people seem to jump on the paranoia bandwagon when it comes to things like the threat of a possible Ebola outbreak in the United States or the dreaded, yet over-hyped Avian influenza (bird flu) from a few years ago. They'll run out and buy hand sanitizer and face masks, yet when the AIDS epidemic hit about 30 years ago it was and still is in many cases next to impossible to get people to practice safe sex. Wear a condom? I don't think so!

So what is it about sex that seems to make a person's judgment fly out the window? Does playing Russian Roulette heighten the sexual experience? Do people's keen sense of denial keep them from believing that something like AIDS happens to other people and not to them? I guess it's the same thing with someone who smokes and then is actually surprised when they're diagnosed with lung cancer or people who eat nothing but junk food and sit on their butts and then wonder why they've developed Type II diabetes or heart disease. So what does it take to make people actually connect the dots and realize that health warnings whatever they are pertain to everyone and not just an unlucky few? Is ignorance really bliss or is ignorance a silent ninja assassin?

A RESILIENT HEART

I'm sure a therapist would have a ball analyzing my poetry.  Some say the eyes are the mirrors to a person's soul, but since you can't see my eyes, I offer up my written words as testament to who I am and what I have lurking in the darkest recesses of my being.  I seem to always be very closely connected to what the heart feels and how truly resilient it is.  A person's healing capacity always amazes me...especially my own.

This week's Words for Wednesday again brought me mental images of love and struggle, but also of somehow being a better more open person because of that pain and struggle.  The words this week in which I wove a poem were: 

Utopian

plagiarism
necktie
automatic
spinster
devout

OR

navigation
tribulation
propagation
explanation
sensation
adulation


A Resilient Heart 

She had many days of Utopian love

Where her heart’s plagiarism was written proudly
With many empty, unanswered "I love you’s"
A stabbing sensation to be broadcasted loudly.

Love at first sight was the automatic explanation

For adulation on love’s battle field so gory
She was a decorated warrior, a lonely spinster
Upon whose chest she wore tribulation with such glory.

Although navigation along the sensual garden path

Without propagation she was barren and deemed quite empty
But rich without love’s flowery neckties and glittery things
This devout spinster’s heart was resilient, pure and free.

THERE'S NO PLACE LIKE HOME

I don't really know where to start this post. My thoughts are pretty jumbled right now. I think it's a combination of not feeling well and being emotionally drained, so please bear with me while I stumble through writing about my latest ordeal which of course involves some rather drama-filled family issues, but aren't all family issues drama-filled? It seems to be the nature of the beast!

About 8 years ago my mother had some sort of break with reality. It was as if aliens had swooped down and abducted the woman I had always known to be my mother and replaced her with a body double void of a mind. She was merely an empty pod for the better part of several years. Naturally, the specialist she had been sent to see quickly diagnosed her with Alzheimer’s and put her on meds to stabilize her condition and to slow down what he claimed would be a steady downward spiral. I never agreed with that diagnosis for many reasons and eventually I weaned her off the meds she had been prescribed for it. Several years later the same doctor admitted that he had been wrong and was amazed by her "recovery." With a lot of hard work and persistence I pulled my mother back from whatever abyss she had fallen into during her breakdown. I have to admit there were times I thought I was ready for a rubber room, but I hung in there and did what I thought was right regardless of what the doctors told me. Today, I'm glad to say my mother is thriving at the young age of 86. The moral to this part of my story is that sometimes you have to follow what your heart and instincts say and cast aside what science and logic dictates.

I try very hard to be a good daughter. Yes, I fall short of perfection on many levels, but there's one thing I can say with absolute certainty...my heart is always in the right place. Because we have friends and family who live in Maine, I try to take my mother there each year so she can spend time with them. As a person ages it becomes more important to be with all the people they love and for that reason I try to be accommodating to my mother's needs. This year our finances didn't allow for our annual trek "home." I felt bad about it, but if you don't have the money, you don't have the money! It's as simple as that!

In July while visiting my Aunt Nancy she asked me why my mother and I weren't going to Maine this year. After explaining to her why I felt we couldn't afford the trip this year, she made an incredibly generous offer by insisting that the three of us make the trip to Maine together and she'd pay all the expenses. Because I knew how important it is to my mother to go to Maine, I agreed to let my aunt do this for us. My aunt is like a second mother to me and after her husband died over 6 years ago, I stepped in and started doing things for her that her daughter and only living child was either unable or unwilling to do. As a result of our increased contact we formed a very close, loving bond and she became even dearer to me than she already was. She recently made the decision to move to Florida so she'd be closer to family so she wouldn't have to be alone any longer. Her decision to move was something my entire family and I was looking forward to and it was a decision she knew would make it easier for all concerned when her health problems started to worsen and she'd need help. Because I love her dearly, I was willing to be that go-to person for her.

Let me now fast forward to our vacation from HELL! The first of two indications that the month we were supposed to spend in Maine would be anything, but paradise was upon arrival I got sick and had to eventually seek medical attention because my own efforts to nurse myself back to health didn't result in me getting better...in fact, I got worse much worse. And the second key indicator of what would lie ahead was when my aunt informed me that my mother and I would have to start paying our own way the first day after we arrived in Maine. Yes, you read that last line correctly! Paying our own way is rather difficult to do when we have very limited resources and was the reason why I had decided against a Maine trip this year. Paying our own way wasn't what she had initially discussed when she insisted that the three of us take this trip together nor was it ever mentioned until we reached our destination. She had offered to pay for everything and it was only because of her generous offer that we had agreed to make the trip to Maine. After being completely blind-sided I took what little cash I had and bought groceries so we could eat while we were there. I never expected nor wanted to eat out every night so cooking our meals and dining in was no big deal to my mother and I because it's what we do every day anyway. My aunt on the other hand likes dining out and although she did eat the meals I prepared, she turned her nose up at the thought of having to eat leftovers and wanted me to cook a different meal each night. Because I was sick the thought of leftovers appealed to me because I simply was worn out and didn't feel like cooking every night. Obviously, she didn’t realize how sick I had gotten or else she just didn’t care.

What became glaringly apparent quickly was that my aunt is an extremely difficult person to please at times and she expects everything to be her way right down to what's watched on television and how loud the volume is. Nothing at all seemed to please her and she had no problem with hatefully telling us that she was not satisfied with anything about the trip and wished she hadn't come. Her obvious unhappiness about the trip made both my mother and I feel bad for agreeing to let her do this for us and we didn't know what to do to help remedy the situation and felt like we were treading on thin ice all the time especially at times when she either wouldn’t speak to us or when she did speak, she’d snap at us harshly.

Our first night in Maine my aunt had a major meltdown (crying, yelling, cussing, etc.) and I expected her to ask to be taken to an airport the next day so she could fly home, but the next morning she perked up and surprised me by continuing on with our journey. Each time she expressed negative feelings it was as if all the things that troubled her from years past had just happened 5 minutes ago. As one day slipped into the next, negative feelings seemed to be all she had and the dark cloud hanging over her seemed to darken even more. Each time we listened to her tales of woe from her troubled childhood, I reminded her that I too had grown up in the same environment so I understood how she felt. I encouraged her to let go of those feelings she had been harboring so she could be at peace. And each time she raved about what a miserable marriage she had for 50 years, she never once felt any relief that she now was free of that misery. It was as if her husband, my uncle was just in the other room and not dead for over 6 years. It was like he still had a strong grip on every aspect of her life. Each time she ranted I told her we'd support any decision she made and that we only wanted her to be happy. Ultimately, she needed to do whatever she thought was the right thing for her. I guess the right thing for her was to spread as much misery as she possibly could and use my mother and I as a whipping board for all the things that had been troubling her.

All the while as we visited with people we had wanted to see while we were in Maine, she refused to allow us to include her in any of our plans. Once when we had close family friends come to where we were staying, she went to her room and refused to come out briefly just to say hello and meet the people. Her actions caused an awkward situation for my mother and me because we were continually put in the position of having to explain why she didn't want to meet and spend time with anyone. Although she adamantly told me that "those people weren't her relatives and she didn't know them," at least half of them were relatives...she just obviously didn't feel the need to get to know them. She also didn't see why I had to explain anything to anyone regarding her or her actions. When I asked her to imagine the roles being reversed, she wasn’t able to see that if my mother and I had done the same thing while visiting her at her house, she'd be embarrassed and probably angry at our actions.

As the days slipped away I felt as if my aunt viewed my mother and I as being bought and paid for thus we were supposed to keep our mouths shut and take whatever she dished out. I guess she decided dowsing herself in Opium perfume even after being asked nicely to spray it sparingly because it has such an overpowering scent was a good way to make us suffer. Try riding in a car or sitting in a room with someone who has bathed in a strong perfume and see how long it is before you feel like you need to vomit. Try having a relaxing vacation with someone who feels the need to clean obsessively or who needs the washing machine and dryer going from morning until evening. Another punishment for us was when she constantly poured chemicals like straight bleach down the drains in the kitchen and bathroom. The caustic fumes just about ran us outside and she continued to do that even after I explained how a septic system works and how it needs bacteria in order to work properly. No matter what was said about anything, she seemed to have no regard for my mother and me and was always right about everything all the time whereas most people automatically know strong perfume or bleach fumes in small confining spaces and people don't mix well and that when travelling in groups “compromise” and “flexibility” is the key factors in having a good trip. For some reason she honestly seemed hell-bent on making our time in Maine as miserable as she possibly could on every level possible and her actions had me utterly bewildered.

At first by her actions had me confused and that confusion quickly developed into disappointment and hurt. My hurt and disappointment only developed into anger at the very end after she apparently felt no need to cut me any slack because I was sick. All the while she refused to do anything with us; she continually talked about her other two nieces, Debbie and Peggy, my cousins and constantly critiqued my brothers as being assholes for not spending any quality time with their mother or helping me with her care. She ranted and raved and called them everything but human, yet when she talked to my cousins on the phone honey would drip from her mouth as she told them she loved them and invited them to come see her. Instead of telling them how she really felt she opted to go the route of being two-faced and then take her anger and resentment of them out on my mother and I. The first week we were there my cousins didn't call her and I thought I was going to go crazy from listening to her constantly bitch about them. I finally went to see Debbie and asked her to please call our aunt because she was sitting there feeling as if no one cared about her and quite frankly she was making us miserable because of it. My cousin promised to call and for a moment I thought all had been righted in the universe and the planets were back in alignment when Debbie called my aunt and they made lunch plans. She actually smiled and I saw a glimmer of sunshine amongst all her darkness and gloom.

But then something happened...all hell broke loose and it was a like a boomerang gone wild. It came swinging back with a vengeance to blindside me with what came next. She felt that my cousins should come visit her and not the other way around even though Peggy has lung cancer and I'm sure she isn't up to making house calls and lengthy visits. All I listened to constantly was how neither Debbie nor Peggy ever comes to see her and how they never call her and that the phone and road runs both ways. She carried on about how none of them even expressed their condolences when her husband died and why should she care anything about them. Listening to her talk about them got me thinking and reality finally smacked me in the face.

Not once in the last 6 years in all the times I've ran back in forth between Florida and North Carolina to check on her, to visit her and to spend time with her so she wouldn't be so lonely and so she'd know she had people who love and care about her has she ever made a trip to see me in Florida. The road runs both ways, does it? It looks to me like the road only runs the way she wants it to run! As for the telephone working both ways, she rarely called me even though I called her at least 2 or 3 times a week unless one of my many health problems was acting up and then I'd suffer in silence because it's difficult putting on a happy face when you don't feel good. I guess the road and phone doesn't run two ways after all and it’s taken me a long time to realize that. I also have rethought how inattentive, selfish, self-absorbed and unfeeling her daughter has actually been. It really makes me wonder if all the harsh, hateful things my aunt has said about her daughter, Sharon is really accurate. It makes me wonder where the truth really lies, but that's something I'll probably never know. After the meltdown about my cousins, Debbie and Peggy she sat in her room for the next 2 days with the door closed and she refused to speak to my mother or me. After two days of sulking, I guess she got tired of being confined. The sun seemed to miraculously come out and she brightened her disposition like nothing had happened. Everything in the world was sunshine and roses. That miracle came as a result of her calling the airline and finding out how expensive it would be for her to fly home. At that point she expected my mother and I to change gears along with her and go do what she wanted to do like look at fall foliage, visit lighthouses and basically do anything that didn't involve our relatives or friends. By then my mother and I had already decided that we wanted to go home. We both had enough abuse and figured there was no salvaging this vacation. Besides, my bladder infection was so bad I could hardly stand it. I had been to an urgent care, but still wasn't feeling any better. Having diabetes, always makes getting anything so much worse!

Most people can expect to be reprimanded for being rude, but what do you do when just the opposite happens? Okay, I never claimed to be perfect and my manners probably could use some polishing, but I have to admit I was utterly astonished for being harshly reprimanded for saying "thank-you" to my aunt at appropriate times when most people would say thank you. She declared “thank you” as a forbidden response to use ever again to her and made us feel awful for being polite. All I know is that I'm just not cut out to be a whipping board especially when I'm sick. I know I should have just left it alone when she kept at me. I shouldn’t have let being sick weaken my resolve. I know I was rude and disrespectful by finally blowing up and telling her "I AM DONE!" I was wrong to tell her that she ruined our vacation and it was unnecessary to tell her that she's a miserable bitch who isn't satisfied with anything. I can admit when I'm wrong when I am wrong, but I feel justified in standing up for my mother and me after being subjected to two weeks of non-stop agony. Maybe I could have approached it in a better way and saved the relationship, but I honestly felt at that point my aunt no longer cared about me.

I believe my aunt owes my mother and me a HUGE apology, but I can safely say that apology isn't something we'll ever get and that's okay. I know how stubborn my aunt is and I truly am okay with how things ended. I gave it my all, but my all wasn't good enough for her. I can accept that. Just like I can accept that in the long run it's entirely her loss and not ours. Sometimes you have to cut your losses and walk away from people you love because they’re toxic and will do nothing but bring you misery. Sure, it hurts, but time will heal the wound. Unfortunately, she decided against taking a plane home and we had n extremely unpleasant road trip back to North Carolina to drop her off. As I drove away from her house headed towards Florida it felt like the weight of the world had been lifted from my shoulders and it didn't matter that I still had 500 more miles to drive until I was home again and in my own bed so I could be sick in peace. And by the way...it took 3 more months of antibiotics and recuperation until my bladder infection was completely gone. Diabetes is a true bitch!