ADDING INSULT TO INJURY

We all do stupid things at times, but when I do something stupid, I always take it to a new level. My stupidity is almost like an art form...a thing of beauty to be remembered and talked about for decades. My newest act of stupidity started 3 days ago and I'm still shaking my head in amazement each time I think about it. Why bother doing that? Well, in part it has to do with being an "emotional cutter" plus I freely admit I'm a glutton for punishment! Seriously, just ask anyone who knows me! Load it on, baby! I can handle anything!

My colonoscopy and upper endoscopy was scheduled for 11:40am on Thursday, March 28th with a 10:40am check-in. Monday, I made sure I had all the necessary implements of torture to cleanse my system of all the bubblegum I swallowed back in 8th grade:

• a package of Dulcolax Tablets
• a 8.3 ounce bottle of Miralax
• two 32 ounce bottles of Gatorade
• all the suggested "clear" liquids to consume during the day before my colonoscopy

I chose the Miralax prep because the prep I used for my two previous colonoscopies were almost unbearable to drink. As we used to say in the days of my youth, it was enough to gag a maggot. They say to refrigerate the prep so it's easier to drink. Ha! If it tastes that bad cold, I can only imagine what it tastes like at room temperature. That'll bring tears to your eyes...and not in a joyful way!

On the day of my prep, I did everything as instructed:

•  I consumed NO food all day
•  I forced clear liquids only
•  At 12 noon, I took 4 Dulcolax tablets and then I mixed the whole bottle of Miralax with the Gatorade, then placed it in the refrigerator to chill
• At 6pm I drank one 8ounce glass of the Miralax/Gatorade mixture and continued to drink 8 ounces every 15 minutes until the entire 64 ounces were gone.
• And then I waited patiently and gave everyone in the house instructions to not dillydally in the downstairs bathroom or else they'd clean up the mess.

By 7:30pm a little ahead of schedule, I had consumed all the mixture. I had never drank Gatorade before, so I didn't know what to expect, but I have to admit it wasn't awful. The taste reminded me of what a salty/sweet, watered-down, orange-flavored Kool-aid might taste like. About an hour after I had finished, I felt a little nauseous, but that quickly passed, but nothing else passed at that time unfortunately.

8 o'clock came and went. 9 o'clock came and went. 10 o'clock, 11 o'clock, 12 o'clock came and went. By 1am, I was starting to get really tired. When 2am came, I was starting to get concerned. Of course, I googled how long it takes a Miralax colonoscopy prep to start working. All that did was make me more anxious. From what I read, the concoction starts working fairly fast. Yes, I have gastroparesis and my digestive system works at a crawl, but this prep was all liquid so there wasn't anything to digest. It should have been a straight shot from end to end. What was the delay?

At about 2:15am, my gut started rumbling so loud that it woke up the dogs. They looked startled as I scurried off to the bathroom. For the next hour, I ran to the bathroom every few minutes. By 3:30am, my gut felt a little better, so I laid down. I felt really fatigued and before I knew it I had fallen sound asleep. 

At about 4am, my sound sleep was interrupted by a gurgling brook. When I awoke, I was a little disoriented at first. I felt wet and there was a foul stench I couldn't quite identify. At first, I thought one of my dogs had had an accident, but as I became fully awake I realized what had happened. I laid there for a moment and rolled my eyes and shook my head! The wet sensation I felt was a gurgling fecal eruption that had happened while I slumbered. Oh yes! While I snoozed, my bowels oozed. I couldn't blame that on the dogs. I laid there trying to figure out how I was going to roll over and get out of bed without creating a bigger mess than there already was.

As I sat up, my gurgling brook started oozing down my legs. I quickly tried to stop it from reaching the floor by tightening the bottoms of my pajamas legs to hold the mess in. It had a tourniquet effect and prevented me from leaving a trail all the way to the bathroom. As I reached the bathroom walking slowly and quite bow-legged, I decided that I didn't like my black capri-length pajamas enough to salvage them. After I took a shower, I discarded my badly soiled pjs in a lavender-scented garbage bag. Ha! [Note to self: write to garbage bag company and tell them they need a stronger scent] I actually managed to tie a neat bow on top of the garbage bag with its bright red plastic ties. After all, it was like a gift going to the local landfill. If I had thought about it, I would have marked the white bag as being "Hazardous Waste" or "WARNING! OPEN AT YOUR OWN RISK!" Between being exhausted and trying to be as quiet as possible, my twisted sense of humor failed me. 

Before I left my house just after 10am to meet my 10:40am check-in time, I had one more eruption followed by another shower. I was beginning to wonder how they were ever going to give me a colonoscopy since I was nowhere near being cleaned out. All sorts of images flashed through my head and none of them were pleasant, yet all of them were quite comical. I could actually envision the words "prolific shitter" being documented in my medical records as a warning/reminder to the future medical staff members.

 

Because anyone getting a colonoscopy/endoscopy requires a person 18 years or older to accompany them to the facility and be their designated driver after the procedure, I brought my youngest son, Matthew with me. As I told him the events of my colonoscopy prep, the thought of his mother falling asleep and losing control of her bowels filled him with a sense that something was right with the world after all.

The story gets really intense here, so pay attention. When we entered the facility to check-in, I was told that my appointment was the next day. I just stood there speechless staring at the woman behind the counter. Somehow I had got my days mixed up and went through the prep for nothing. Does that qualify me as being a dumbass? I wonder how many people have done that exact same thing. 

At this point, my options were to wait around until after 5pm and let the other doctor do my procedures since my doctor wasn't on site that day, but I was told that the other doctor was already an hour and a half behind and it wasn't even 11am. They were even nice enough to call around to see if my doctor was at one of the other facilities, but alas, he was in the office all day and had no procedures scheduled. My other options were to continue to push clear liquids all day and to come back the next day to do my scheduled procedure or to reschedule my appointment. And the winner is...I chose to reschedule because I'm diabetic and felt it wasn't smart to go for two day without food. 

Now, to add insult to injury, when I left The Endoscopy Center I was famished so I had my son stop at one of my favorite restaurants for lunch...a Mexican place. I ordered fajitas. They were savagely devoured like I hadn't eaten in a month. I followed that by having an order of Nachos Bellgrande, two beef MexiMelts and two soft beef tacos from Taco Hell (Taco Bell) the very next day because nothing says glutton for punishment quite like eating food from Taco Hell. My already compromised digestive system was screaming, "WTF are you doing?" Yesterday afternoon, I finally completed my clean out by taking Imodium to quiet my bowels. They weren't just singing! They had gotten to the fever pitch of a heavy metal band. My intestines felt like they were in a crowded mosh pit with no way out. 

Things are back to normal now and my next appointment is scheduled for May 2nd. The moral to this story is DO NOT fall asleep after doing a colonoscopy prep and always know what day of the week it is.

*reposted and edited from March 19, 2019

THE MEDICAL MARIJUANA METAMORPHOSIS

Here are some random observations I have made in the past few weeks:

My hand-written notes on a piece of paper towel
because that was the first thing I could grab

1. The combination of taking narcotics long-term and using Victoza (one of the injectable diabetic meds I use) on top of having gastroparesis  (my digestive tract hates me) has rendered me a involuntary prisoner with a wicked case of constipation. You see, alone each of those three components causes digestive problems. Together they scream, WTF! The meds slow my digestive tract down to a crawl and the gastroparesis is just what it sounds like...a paralyzed gastric tract. I had to wave a white flag and surrender!  Now, that I've stopped taking narcotics, my digestive system is much happier and so am I.
2. My new "medicine" makes me friendlier and more talkative. Before, the pain I felt left me without any desire to interact with people and now I'm starting to get my "Mildred" vibe back. Her inner child has arisen from a very long nap (like Rip Van Winkle except Mildred is not a short fat male.)
3. My tastes in what I watch on television has been altered greatly. I've been watching more documentaries and feel a need to soak up knowledge again. My mind is like a very dry sponge.
4. I've gone for such a long time not listening to music and now music soothes my soul. And it sounds terrific! It's horrible how pain has sucked just about all the life from me. It happened so gradually that I didn't even notice how far away from myself I had gotten.
5. My taste in humor is changing. Where I used to watch some generic humor (a sitcom with a comic for the lead role) for mindless entertainment, now I tend to want to be more focused on which comic I watch. If I think someone is funny then I want to see their stand up routine. That's the only way I can assess if they really are funny.
6. Food...OMG! ALL food tastes so incredible. I'd forgotten what being ravenous was like. Now, I need to find something low calorie to munch on. Any suggestions? I could always save money and go in the back yard and graze like a cow. That'd be cool as long as no one tried to milk me.
7. I now have a need to have a notebook to jot down ideas as I think of them, because these days it's gone as soon as I blink my eyes if I don't write it down.
8. My whole thought process feel like it's undergoing a transformation. I went in as a caterpillar and came out a butterfly. This girl is on fire!

   

   Mildred's metamorphosis

9. I'm so easily distracted because I have so many ideas racing to get out at the same time. Being distracted almost makes me dizzy at times. I start saying something and when a natural pause is acceptable, I forget what I was talking about and then go right onto a new topic. It's a seamless transition, but it frustrates me that I get all jumbled up at times.
10. The CBD part of my new "medicine" helps ease my pain/inflammation and the THC gives me a righteous buzz. While my body physically starts to relax, my mind has been flipped on. I've only been "dosing" myself for a few weeks, but I'm already starting to feel less all over pain. What pain I have now has become more condensed and concentrated and usually doesn't radiate outward all over my body like it has in the past. 

WORD OF THE DAY:

*Replenish

*to make something full again, or to bring it back to its previous level by replacing what has been used

HALLELUJAH! I've been replenished...

THE BEAST WITHIN ME

As this year winds down, it's time for me to reflect on the things that affect my life the most.  In the past several years, my health issues have worsened, but I think I've finally gotten to the point of being so sick and tired of being sick and tired that it's time for me to dig down deep and grab whatever stamina I have left and try to save this slowly sinking ship.  2014 has got to be a year of change! Great things have got to happen!

Here's a list of my current health problems:

1. Insulin dependent Type ll Diabetes - uncontrolled, of course!  No doctor in the past 11 years

since I was diagnosed has been able to get my A1C in a normal range.  Trust me, EVERYTHING has been tried and it remains a mystery as to why my diabetes is so tenacious.  I wonder if it might have a genetic factor to it since my paternal grandmother had the same type of tenacity with treating her diabetes.  As an added bonus of my uncontrolled diabetes I developed diabetic neuropathy in my feet.  The burning sensation and stabbing pain is so bad at times it makes me want to cry.  Standing on my feet during these bouts is challenging and very painful.  Recently, I was put on Lyrica and that initially helped with easing the neuropathic pain in my feet and also with the "all over" pain I experience from fibromyalgia I was diagnosed as having about a decade ago.  My other diabetic related health problem is gastroparesis. Gastroparesis is another fun diabetic complication!  Food sits undigested in my stomach for long periods of time due to damaged nerves in my stomach.  It's hard to describe how good food tastes when it goes down and how putrid it is after sitting in my stomach for a day or so.  This condition causes pain in my upper gastric tract.  Needless to say, I eat A LOT of cottage cheese and applesauce which is easy to digest.  I do feel thankful that I haven't developed anything more serious as a result of my uncontrolled diabetes and hope my upcoming endocrinologist appointment will be a start to finding a solution to these problems. 

 

2. Pain - I'm lumping all my various spinal related issues into one large category called "PAIN".   In 2003, I had 2 disks in my neck fused.  At that time, I was told I had the neck of a 94 year old woman and was told I had several things going on with my back and neck.  After that surgery, I swore I'd never have another surgery because the recovery was so difficult.  "Never" lasted 9 years.  By the time I had my second neck surgery, I couldn't raise my head to eye level without it causing my arms to go completely numb.  It was next to impossible to function without the use of my arms and I knew the longer I put off surgery the more permanent the nerve damage was going to be, so it was back to the neurosurgeon to have 2 more disks fused.  From September 2012 to June 2013, a nine month period I had 3 back surgeries.  My neurosurgeon claims there isn't anything else he can do for me, so basically, I'm supposed to just grin and bear it but grinning and bearing it consists of days where I can barely walk or stand up straight due to the intense pain.  I have severe headaches from the muscles in my neck and back tightening and causing horrific muscle spasms, nausea and blurred vision.  I know I need to go get a second opinion, but I'm really afraid to do that.  I keep asking myself what I'm afraid of and I don't know if it's that someone will agree that there's nothing else that can be done for me or if someone will say I need more surgery.  Of course, I see a pain management specialist, but all that means is getting combos of potent narcotics to take.  I so hate doing that, but am forced to take the pain meds when I can't function any other way.  In 2009, I went off ALL my pain meds cold turkey because I wasn't getting the relief from them I should have been getting.  It was insane to keep filling my body with meds that were doing more harm than good.  Withdrawal took about a month of pure hell. Now 4 years later, I'm right back there again and the doctor wants to try me on what I call the "Dear Jesus" patch (Duragesic)  or Methadone because everything else I take or have taken just doesn't work.   I'm not sure how I feel about taking this next step.  I'll mull it over in the next couple of weeks before my next appointment with him and make some sort of decision. 

3.  Autoimmune hepatitis - The 3 most common autoimmune diseases are lupus, rheumatoid arthritis and Crohn's disease.  Apparently my body has decided it doesn't like my liver anymore.  Isn't that special?  Too bad it didn't decide to dislike the fat on my stomach and hips instead!  After having a complete work up (CT of the abdomen, abdominal ultrasound, labwork, etc.) followed by a liver biopsy, my doctor thought it was best that I go to Oschner's Clinic in New Orleans.  It's the closest transplant facility to where I live.  He felt it was a good idea for me to get in their system in case at some future date I need their services.  The following is a short rundown on what an autoimmune disease is if you're not familiar with it.

Our bodies have an immune system, which is a complex network of special cells and organs that defends the body from germs and other foreign invaders. At the core of the immune system is the ability to tell the difference between self and nonself: what's you and what's foreign. A flaw can make the body unable to tell the difference between self and nonself. When this happens, the body makes autoantibodies that attack normal cells by mistake. At the same time special cells called regulatory T cells fail to do their job of keeping the immune system in line. The result is a misguided attack on your own body. This causes the damage we know as autoimmune disease. The body parts that are affected depend on the type of autoimmune disease.

4. Sleep apnea -  Controlled with the use of a CPAP machine. This one I got scared into doing because my O2 stats had dropped to 73% while sleeping (anything under 90% is considered respiratory distress) and I had stopped breathing over 150 times per hour determined by a sleep study, but the good news was that I had also started breathing again over 150 times.  When the doctor reviewed the results of my sleep study, he was amazed that I hadn't had a stroke or a heart attack in my sleep.  That night I started using my CPAP machine and have used it every night since then.  I am a believer!

5. All the other "lesser" stuff - high blood pressure (controlled by meds), high cholesterol (controlled by meds), Vitamin D deficiency (in the process of being controlled by meds), GERD (controlled by meds), chronic insomnia (uncontrolled, but I do take Trazodone and it works sometimes), adult onset asthma (controlled by meds PRN)  I'm sure I've missed something, but quite frankly, my dear...I don't give a damn right now!  I'm off to take a nap because all of a sudden I desperately need one.

Update 2/19/14: I've been on 2 more rounds of 3 months of Vitamin D therapy but my lab values refuse to improve.  I have an appointment with an endocrinologist to address that and my diabetes.  I think I'm falling apart!

6. Depression and anxiety - This is something I've been in denial about for such a long time, but it's the silent, dark horse I ride.  I isolate myself so I don't have to be around people because I don't want them to see me suffer, but isolating myself is the worse thing I can do.  I know depression makes all ailments feel worse, but to treat it means taking more drugs and many of those drugs cause weigh gain and any weight gain makes my diabetes worse.  It's a vicious circle that seems to have no jumping off point.  I no longer know how to help myself.  At this point I don't know if there is any real help.