SUGAR IS NOT MY FRIEND

The following comment is one I left as a response on Spo-Reflections blog.  He laments that although he's not a sugarholic, he does occasionally have "unnatural cravings."   As we all know when you get an itch, you have to scratch it.  I wish my itches weren't such bitches! They all seem to go way beyond being harmless unnatural cravings.  For me, that sweet sugar itch is a real blood sucking demon!

I’ve tried desperately to weed sugar from the mix of what I consume. So far I’ve been fairly successful…my A1C smiles, but damn it, sometimes I want a King size Snickers and a Coke and raspberry pie with vanilla ice cream and mountains of warm, homemade oatmeal cookies and a HUGE glass of ice cold milk (not 1%)…just to name a few. I guess after feeling like I’ve rammed my head into the proverbial wall enough, I decided to be more compliant and accept that sugar and any simple carb in mass quantities …oh hell, who am I kidding? even in small quantities it’s like committing suicide slowly. My mantra needs to be “SUGAR IS NOT MY FRIEND!"

The truth of the matter is anything, but comical.  Diabetes is a horrible disease to have and difficult to manage successfully.  I know it's not impossible...just difficult!  It requires making informed choices: sugar or feet?  sugar or eyesight?  sugar or liver?  I could go on and on because let's face it, uncontrolled diabetes effects everything in your body and uncontrolled diabetes is a sure death sentence. Yes, we're all going to die, but why hasten the process?  Why add to the list of  things that go wrong as our body naturally ages? 

My last A1C was 10.3. My endocrinologist wants it to be under 7.5 in 3 months when I'm tested again. Do you know what your A1C is?  If not, maybe you should have it tested the next time you have to have blood work done.

According to the Mayo Clinic:

For someone who doesn't have diabetes, a normal A1C level can range from 4.5 to 6 percent. Someone who's had uncontrolled diabetes for a long time might have an A1C level above 8 percent.

When the A1C test is used to diagnose diabetes, an A1C level of 6.5 percent or higher on two separate tests indicates you have diabetes. A result between 5.7 and 6.4 percent is considered prediabetes, which indicates a high risk of developing diabetes.

For most people who have previously diagnosed diabetes, an A1C level of 7 percent or less is a common treatment target. Higher targets may be chosen in some individuals. If your A1C level is above your target, your doctor may recommend a change in your diabetes treatment plan. Remember, the higher your A1C level, the higher your risk of diabetes complications.

 

A1C level	Estimated average blood sugar level
5 percent	97 mg/dL (5.4 mmol/L)
6 percent	126 mg/dL (7 mmol/L)
7 percent	154 mg/dL (8.5 mmol/L)
8 percent	183 mg/dL (10.2 mmol/L)
9 percent	212 mg/dL (11.8 mmol/L)
10 percent	240 mg/dL (13.3 mmol/L)
11 percent	269 mg/dL (14.9 mmol/L)
12 percent	298 mg/dL (16.5 mmol/L)
13 percent	326 mg/dL (18.1 mmol/L)
14 percent	355 mg/dL (19.7 mmol/L)

*Repost from June 11, 2014

ITSY BITSY SPIDER

As I worked outside in my yard in early January, I got bit by "something" on my left outer ankle.  I never thought much about it until months later when it didn't heal and started to get worse. The bite was located so I couldn't get a good look at it straight on so I started taking pictures of it periodically to compare to see what it was actually doing. I'm no expert, but to me it looked like a spider bite. It would appear like it would start to heal and then it would break open again and that process kept happening repeatedly. 

Around July, I decided it was time to have my primary care doctor look at it because I'm diabetic and although wounds do heal slower for diabetics, I figured six months was more than enough time for anything to heal. She immediately told me she was sending me to a vascular surgeon to have him evaluate it. I got all the particulars on why she thought that was necessary and it made sense so off I went to wait to hear from the vascular surgeons office.

It took about two weeks to get a call to set up an appointment. Yesterday I had my appoinment with that doctor. With much trepidation, I envisioned him poking and prodding my wound, but none of that happened. When he and his PA entered the room they both asked me questions, examined the wound and they both felt the pulse in my foot. I showed them the pictures I had taken of the wound and they agreed that it was a spider bite. The doctor stood back and told me I have no pulse in my left foot. He said I was going to first need an ultrasound done which they did of both legs and blood drawn to prepare me for having an angiogram done that would be scheduled for Friday morning. Hopefully, the angiogram will restore the blood flow to my foot so the wound will finally heal.

The moral of the story is: Don't delay getting wounds looked at assuming they will heal on their own without any assistance (BUT I had it looked at in the ER in June and they said it looked fine! I guess because my foot wasn't falling off it looked fine to them! IDIOTS!) And this goes with double or triple caution if you're a diabetic because you can end up losing a limb. I am in no way completely out of the woods yet and that scares me.  The reality of the situation really is a slap in the face and an eye opener. I need to be more careful. The wound still needs to heal. I'm just thankful it was caught in time to restore the blood flow to my foot to give it a chance to heal.

To Breathe or Not To Breathe

For those of you who may be on the fence about using a CPAP machine for sleep apnea, I, too struggled for an exceptionally long time knowing I needed to use my machine. It's not an easy task and I attempted it several times with no success because I looked at it as being intrusive instead of being helpful and necessary.

I was originally diagnosed with sleep apnea about 2002, but I never made myself use the CPAP I got. At that time, my insurance company didn't consider the humidifier part of the device as being necessary. Try using a CPAP without it. I would wake up after just a few hours and my nasal passage and throat felt like it was on fire. I discussed this with my doctor and the only suggestion she had was for me to coat the inside of my nose with KY jelly each night. I know it sounds gross, but I tried what the doctor suggested. I had the same reaction plus I had dried KY jelly flakes all over the inside of my nose which made me look like I had some dreadful disease. It was a wonderful picture and a joy to try to clean out each morning before work! Shortly thereafter I finally gave up trying to use the machine until about 2012 when my health was going downhill fast. My diabetes had gotten totally out of control. I was tired all the time throughout the day, I wasn't sleeping well at night and I was having trouble concentrating during the day. It was as if I was living in a fog all the time.

When I did sleep throughout the night, I would wake up struggling to breathe. Then in 2012, I received a new CPAP machine which I knew I needed to use. No more lame excuses! My latest sleep study revealed I stopped breathing 55.9 times per hour with apnea-related episodes. Wow! That meant I stopped breathing almost once every minute. That number kept resonating in my head repeatedly. My lowest oxygen level was 73%. Normal levels should be 95-100%.  Anything below 90% is considered being in respiratory distress. My doctor was amazed that I hadn't had a heart attack or a stroke in my sleep. He also was amazed that I could function during the day after having been deprived of oxygen all night long night after night. Is "functioning" what this is called? If he only knew how much I was struggling just to put one foot in front of the other!

When I received my new CPAP machine, I used the machine that night and every night since then...NO MORE EXCUSES! Those stats scared me enough to make me realize that I was asking for trouble and it wasn't the kind of trouble I wanted. Yes, this CPAP is equipped with a humidifier so it works without making my nasal passages feel like they're on fire.  I selected a mask that felt comfortable to me to wear.  I knew that was important. This machine isn't loud so it doesn't sound like a jack hammer next to my head. When I put the mask on that first night I actually told myself OUT LOUD that I was going to wear the mask ALL night long and that I wasn't going to take it off unless I has to get up to use the bathroom. When I woke up the next morning, my mask was still on and I felt like I had accomplished an amazing feat. It wasn't long before I noticed I started feeling better.  I had more energy and I wasn't tired all the time. From there on out whenever I would lay down whether it was to take a nap during the day or to watch television in the evening in my bedroom, I would put my CPAP on just in case I would fall asleep.

The moral of this story is if you're diagnosed with sleep apnea, take it seriously. Do whatever you need to do to make yourself get used to using your machine. And most important, be compliant and use your machine faithfully.  Sleep apnea does kill people. Don't be stupid and be one of those people who turn into a statistic.

Yes, I have a dog that does this to me. It's such a wonderful way to wake up from a sound sleep! She usually sleeps in her dog bed, but when she's gassy she likes to sleep on the floor right next to my night stand and well, if you've ever had the pleasure of smelling a dog fart, then you can only imagine what one funneled directly into your nose while you're sound asleep would be like. I jump up using some really bad language and Libby heads upstairs quickly and then turns around at the top of the stairs and looks at me like as if to say, "you need to chill out, lady! It's only a little gas!"

Quarantined Day #7

I think my body may just make it through all this yardwork I'm doing. EVERYTHING pertaining to my house has been sorely neglected for so long that it makes me feel so ashamed and so sad, but everyone I say that to just looks at me like I'm crazy or thinks I'm just making an excuse for being lazy. Well, I'm neither, I care about where I live, but I simply haven't been physically able to do the work and I can't afford to hire it to be done by some else. It's a hell of a situation to be in and one I never dreamed I'd be experiencing. I also never dreamed I'd get to the point I'm at now, but I've really pushed myself and here I am and now, I have my hands full. Sometimes I feel so overwhelmed when I look around me and see all the work I have to do. I have to keep reminding myself ONE DAY AT A TIME, MILDRED! One day at a time...and then when it gets too hot (I live in Florida) move inside and start some projects in there because there's as many inside as there's outside! Lucky me! I think Cecil, the partridge and I need to go to Lowe's and start hanging out in the contractor's section and start picking up contractors! To hell with bars! I'm to old for bars and besides my tail feathers don't shake like they shook 30 years ago. But I have a flashy hammer and a cool partridge...lol

So, each day before I go outside to do hard physical work which includes cutting down trees and cutting them up, I put on my back brace because without it I wouldn't be able to do anything but sit there and look at everything that needs to be done.  A few years ago, after I fell down my stairs and fractured a vertebrae which just added to all the other things that's wrong with my back I struggled to be able to stand and walk.  In fact, I couldn't stand for more than a minute or two before I needed to sit down. It really sucked and frustrated the hell out of me and although everyone kept telling to accept my limitations, I just couldn't do that. I wouldn't that. Over time, gradually, I pushed myself to the point of being able to do things again. It took me a few years to get there, but I was determined. I didn't announce to anyone that was my goal because I knew I most likely would have been vetoed on my decision to fight through my pain, ditch pain management and all the narcotics after years and years of using them and then gradually try to get my life back. Once I accomplished that, I started working towards getting my diabetes under control which had never been under control.

Since last May I've lost about 70 pounds and my A1C is where it's supposed to be for the first time since I was diagnosed with diabetes in 2002.  The only thing that concerns me now is that the last time I went to my endocrinologist, he switched my injectable meds to something new. You see, since I had started losing weight, I hadn't had to inject any fast-acting insulin and that's something I never dreamed I would ever stop doing. I injected Tresiba (long-acting insulin) at bedtime and Victoza in the morning after checking my fasting blood sugar. So my doctor decided to start me on Soliqua which supposedly combines the two in one injection.  I thought that was great  because it was going to only be one shot a day, but like any new medication your body takes time to adjust to it and my blood sugar has crept up somewhat. It's not a giant spike, but I worked hard to get it down and well...I know the story. The drug rep walks into the doctor's office with a new drug and wants the  doctor to push it and so the doctor starts prescribing to his patients. I happened to be one of those patients. I think when I go to my primary care doctor in a few weeks, I'm going to discuss the matter and try to get back on what I was on. I don't mind two shots a day and I wasn't asked if I wanted to switch, the other doctor just switched me over to the new drug. I would go back to the endocrinologist, BUT he's harder than hell to get in to see. It's like asking for an appointment with God. I guess things could be worse...

Now, as for my results from my coronavirus testing, there still are none, but Martha told me yesterday that I was supposed to have set up some kind of account and it was explained on the paperwork they gave me. I said, "What paperwork????" Since she and I went to different testing sites I guess I went to the shit show site where they handed me a mask and stuck a swab up my nose and tickled my grey matter, but I don't remember getting any paperwork. It's all included in Murphy's Laws and those are the Laws I live by every day of my life. So Martha is going to take a picture of the paperwork and text it to me so I can see what she received so MAYBE I can go from there and find something out soon.

THE MEDICAL MARIJUANA METAMORPHOSIS

Here are some random observations I have made in the past few weeks:

My hand-written notes on a piece of paper towel
because that was the first thing I could grab

1. The combination of taking narcotics long-term and using Victoza (one of the injectable diabetic meds I use) on top of having gastroparesis  (my digestive tract hates me) has rendered me a involuntary prisoner with a wicked case of constipation. You see, alone each of those three components causes digestive problems. Together they scream, WTF! The meds slow my digestive tract down to a crawl and the gastroparesis is just what it sounds like...a paralyzed gastric tract. I had to wave a white flag and surrender!  Now, that I've stopped taking narcotics, my digestive system is much happier and so am I.
2. My new "medicine" makes me friendlier and more talkative. Before, the pain I felt left me without any desire to interact with people and now I'm starting to get my "Mildred" vibe back. Her inner child has arisen from a very long nap (like Rip Van Winkle except Mildred is not a short fat male.)
3. My tastes in what I watch on television has been altered greatly. I've been watching more documentaries and feel a need to soak up knowledge again. My mind is like a very dry sponge.
4. I've gone for such a long time not listening to music and now music soothes my soul. And it sounds terrific! It's horrible how pain has sucked just about all the life from me. It happened so gradually that I didn't even notice how far away from myself I had gotten.
5. My taste in humor is changing. Where I used to watch some generic humor (a sitcom with a comic for the lead role) for mindless entertainment, now I tend to want to be more focused on which comic I watch. If I think someone is funny then I want to see their stand up routine. That's the only way I can assess if they really are funny.
6. Food...OMG! ALL food tastes so incredible. I'd forgotten what being ravenous was like. Now, I need to find something low calorie to munch on. Any suggestions? I could always save money and go in the back yard and graze like a cow. That'd be cool as long as no one tried to milk me.
7. I now have a need to have a notebook to jot down ideas as I think of them, because these days it's gone as soon as I blink my eyes if I don't write it down.
8. My whole thought process feel like it's undergoing a transformation. I went in as a caterpillar and came out a butterfly. This girl is on fire!

   

   Mildred's metamorphosis

9. I'm so easily distracted because I have so many ideas racing to get out at the same time. Being distracted almost makes me dizzy at times. I start saying something and when a natural pause is acceptable, I forget what I was talking about and then go right onto a new topic. It's a seamless transition, but it frustrates me that I get all jumbled up at times.
10. The CBD part of my new "medicine" helps ease my pain/inflammation and the THC gives me a righteous buzz. While my body physically starts to relax, my mind has been flipped on. I've only been "dosing" myself for a few weeks, but I'm already starting to feel less all over pain. What pain I have now has become more condensed and concentrated and usually doesn't radiate outward all over my body like it has in the past. 

WORD OF THE DAY:

*Replenish

*to make something full again, or to bring it back to its previous level by replacing what has been used

HALLELUJAH! I've been replenished...

IS IGNORANCE REALLY BLISS?

I was just thinking about how quickly so many people seem to jump on the paranoia bandwagon when it comes to things like the threat of a possible Ebola outbreak in the United States or the dreaded, yet over-hyped Avian influenza (bird flu) from a few years ago. They'll run out and buy hand sanitizer and face masks, yet when the AIDS epidemic hit about 30 years ago it was and still is in many cases next to impossible to get people to practice safe sex. Wear a condom? I don't think so!

So what is it about sex that seems to make a person's judgment fly out the window? Does playing Russian Roulette heighten the sexual experience? Do people's keen sense of denial keep them from believing that something like AIDS happens to other people and not to them? I guess it's the same thing with someone who smokes and then is actually surprised when they're diagnosed with lung cancer or people who eat nothing but junk food and sit on their butts and then wonder why they've developed Type II diabetes or heart disease. So what does it take to make people actually connect the dots and realize that health warnings whatever they are pertain to everyone and not just an unlucky few? Is ignorance really bliss or is ignorance a silent ninja assassin?

THERE'S NO PLACE LIKE HOME

I don't really know where to start this post. My thoughts are pretty jumbled right now. I think it's a combination of not feeling well and being emotionally drained, so please bear with me while I stumble through writing about my latest ordeal which of course involves some rather drama-filled family issues, but aren't all family issues drama-filled? It seems to be the nature of the beast!

About 8 years ago my mother had some sort of break with reality. It was as if aliens had swooped down and abducted the woman I had always known to be my mother and replaced her with a body double void of a mind. She was merely an empty pod for the better part of several years. Naturally, the specialist she had been sent to see quickly diagnosed her with Alzheimer’s and put her on meds to stabilize her condition and to slow down what he claimed would be a steady downward spiral. I never agreed with that diagnosis for many reasons and eventually I weaned her off the meds she had been prescribed for it. Several years later the same doctor admitted that he had been wrong and was amazed by her "recovery." With a lot of hard work and persistence I pulled my mother back from whatever abyss she had fallen into during her breakdown. I have to admit there were times I thought I was ready for a rubber room, but I hung in there and did what I thought was right regardless of what the doctors told me. Today, I'm glad to say my mother is thriving at the young age of 86. The moral to this part of my story is that sometimes you have to follow what your heart and instincts say and cast aside what science and logic dictates.

I try very hard to be a good daughter. Yes, I fall short of perfection on many levels, but there's one thing I can say with absolute certainty...my heart is always in the right place. Because we have friends and family who live in Maine, I try to take my mother there each year so she can spend time with them. As a person ages it becomes more important to be with all the people they love and for that reason I try to be accommodating to my mother's needs. This year our finances didn't allow for our annual trek "home." I felt bad about it, but if you don't have the money, you don't have the money! It's as simple as that!

In July while visiting my Aunt Nancy she asked me why my mother and I weren't going to Maine this year. After explaining to her why I felt we couldn't afford the trip this year, she made an incredibly generous offer by insisting that the three of us make the trip to Maine together and she'd pay all the expenses. Because I knew how important it is to my mother to go to Maine, I agreed to let my aunt do this for us. My aunt is like a second mother to me and after her husband died over 6 years ago, I stepped in and started doing things for her that her daughter and only living child was either unable or unwilling to do. As a result of our increased contact we formed a very close, loving bond and she became even dearer to me than she already was. She recently made the decision to move to Florida so she'd be closer to family so she wouldn't have to be alone any longer. Her decision to move was something my entire family and I was looking forward to and it was a decision she knew would make it easier for all concerned when her health problems started to worsen and she'd need help. Because I love her dearly, I was willing to be that go-to person for her.

Let me now fast forward to our vacation from HELL! The first of two indications that the month we were supposed to spend in Maine would be anything, but paradise was upon arrival I got sick and had to eventually seek medical attention because my own efforts to nurse myself back to health didn't result in me getting better...in fact, I got worse much worse. And the second key indicator of what would lie ahead was when my aunt informed me that my mother and I would have to start paying our own way the first day after we arrived in Maine. Yes, you read that last line correctly! Paying our own way is rather difficult to do when we have very limited resources and was the reason why I had decided against a Maine trip this year. Paying our own way wasn't what she had initially discussed when she insisted that the three of us take this trip together nor was it ever mentioned until we reached our destination. She had offered to pay for everything and it was only because of her generous offer that we had agreed to make the trip to Maine. After being completely blind-sided I took what little cash I had and bought groceries so we could eat while we were there. I never expected nor wanted to eat out every night so cooking our meals and dining in was no big deal to my mother and I because it's what we do every day anyway. My aunt on the other hand likes dining out and although she did eat the meals I prepared, she turned her nose up at the thought of having to eat leftovers and wanted me to cook a different meal each night. Because I was sick the thought of leftovers appealed to me because I simply was worn out and didn't feel like cooking every night. Obviously, she didn’t realize how sick I had gotten or else she just didn’t care.

What became glaringly apparent quickly was that my aunt is an extremely difficult person to please at times and she expects everything to be her way right down to what's watched on television and how loud the volume is. Nothing at all seemed to please her and she had no problem with hatefully telling us that she was not satisfied with anything about the trip and wished she hadn't come. Her obvious unhappiness about the trip made both my mother and I feel bad for agreeing to let her do this for us and we didn't know what to do to help remedy the situation and felt like we were treading on thin ice all the time especially at times when she either wouldn’t speak to us or when she did speak, she’d snap at us harshly.

Our first night in Maine my aunt had a major meltdown (crying, yelling, cussing, etc.) and I expected her to ask to be taken to an airport the next day so she could fly home, but the next morning she perked up and surprised me by continuing on with our journey. Each time she expressed negative feelings it was as if all the things that troubled her from years past had just happened 5 minutes ago. As one day slipped into the next, negative feelings seemed to be all she had and the dark cloud hanging over her seemed to darken even more. Each time we listened to her tales of woe from her troubled childhood, I reminded her that I too had grown up in the same environment so I understood how she felt. I encouraged her to let go of those feelings she had been harboring so she could be at peace. And each time she raved about what a miserable marriage she had for 50 years, she never once felt any relief that she now was free of that misery. It was as if her husband, my uncle was just in the other room and not dead for over 6 years. It was like he still had a strong grip on every aspect of her life. Each time she ranted I told her we'd support any decision she made and that we only wanted her to be happy. Ultimately, she needed to do whatever she thought was the right thing for her. I guess the right thing for her was to spread as much misery as she possibly could and use my mother and I as a whipping board for all the things that had been troubling her.

All the while as we visited with people we had wanted to see while we were in Maine, she refused to allow us to include her in any of our plans. Once when we had close family friends come to where we were staying, she went to her room and refused to come out briefly just to say hello and meet the people. Her actions caused an awkward situation for my mother and me because we were continually put in the position of having to explain why she didn't want to meet and spend time with anyone. Although she adamantly told me that "those people weren't her relatives and she didn't know them," at least half of them were relatives...she just obviously didn't feel the need to get to know them. She also didn't see why I had to explain anything to anyone regarding her or her actions. When I asked her to imagine the roles being reversed, she wasn’t able to see that if my mother and I had done the same thing while visiting her at her house, she'd be embarrassed and probably angry at our actions.

As the days slipped away I felt as if my aunt viewed my mother and I as being bought and paid for thus we were supposed to keep our mouths shut and take whatever she dished out. I guess she decided dowsing herself in Opium perfume even after being asked nicely to spray it sparingly because it has such an overpowering scent was a good way to make us suffer. Try riding in a car or sitting in a room with someone who has bathed in a strong perfume and see how long it is before you feel like you need to vomit. Try having a relaxing vacation with someone who feels the need to clean obsessively or who needs the washing machine and dryer going from morning until evening. Another punishment for us was when she constantly poured chemicals like straight bleach down the drains in the kitchen and bathroom. The caustic fumes just about ran us outside and she continued to do that even after I explained how a septic system works and how it needs bacteria in order to work properly. No matter what was said about anything, she seemed to have no regard for my mother and me and was always right about everything all the time whereas most people automatically know strong perfume or bleach fumes in small confining spaces and people don't mix well and that when travelling in groups “compromise” and “flexibility” is the key factors in having a good trip. For some reason she honestly seemed hell-bent on making our time in Maine as miserable as she possibly could on every level possible and her actions had me utterly bewildered.

At first by her actions had me confused and that confusion quickly developed into disappointment and hurt. My hurt and disappointment only developed into anger at the very end after she apparently felt no need to cut me any slack because I was sick. All the while she refused to do anything with us; she continually talked about her other two nieces, Debbie and Peggy, my cousins and constantly critiqued my brothers as being assholes for not spending any quality time with their mother or helping me with her care. She ranted and raved and called them everything but human, yet when she talked to my cousins on the phone honey would drip from her mouth as she told them she loved them and invited them to come see her. Instead of telling them how she really felt she opted to go the route of being two-faced and then take her anger and resentment of them out on my mother and I. The first week we were there my cousins didn't call her and I thought I was going to go crazy from listening to her constantly bitch about them. I finally went to see Debbie and asked her to please call our aunt because she was sitting there feeling as if no one cared about her and quite frankly she was making us miserable because of it. My cousin promised to call and for a moment I thought all had been righted in the universe and the planets were back in alignment when Debbie called my aunt and they made lunch plans. She actually smiled and I saw a glimmer of sunshine amongst all her darkness and gloom.

But then something happened...all hell broke loose and it was a like a boomerang gone wild. It came swinging back with a vengeance to blindside me with what came next. She felt that my cousins should come visit her and not the other way around even though Peggy has lung cancer and I'm sure she isn't up to making house calls and lengthy visits. All I listened to constantly was how neither Debbie nor Peggy ever comes to see her and how they never call her and that the phone and road runs both ways. She carried on about how none of them even expressed their condolences when her husband died and why should she care anything about them. Listening to her talk about them got me thinking and reality finally smacked me in the face.

Not once in the last 6 years in all the times I've ran back in forth between Florida and North Carolina to check on her, to visit her and to spend time with her so she wouldn't be so lonely and so she'd know she had people who love and care about her has she ever made a trip to see me in Florida. The road runs both ways, does it? It looks to me like the road only runs the way she wants it to run! As for the telephone working both ways, she rarely called me even though I called her at least 2 or 3 times a week unless one of my many health problems was acting up and then I'd suffer in silence because it's difficult putting on a happy face when you don't feel good. I guess the road and phone doesn't run two ways after all and it’s taken me a long time to realize that. I also have rethought how inattentive, selfish, self-absorbed and unfeeling her daughter has actually been. It really makes me wonder if all the harsh, hateful things my aunt has said about her daughter, Sharon is really accurate. It makes me wonder where the truth really lies, but that's something I'll probably never know. After the meltdown about my cousins, Debbie and Peggy she sat in her room for the next 2 days with the door closed and she refused to speak to my mother or me. After two days of sulking, I guess she got tired of being confined. The sun seemed to miraculously come out and she brightened her disposition like nothing had happened. Everything in the world was sunshine and roses. That miracle came as a result of her calling the airline and finding out how expensive it would be for her to fly home. At that point she expected my mother and I to change gears along with her and go do what she wanted to do like look at fall foliage, visit lighthouses and basically do anything that didn't involve our relatives or friends. By then my mother and I had already decided that we wanted to go home. We both had enough abuse and figured there was no salvaging this vacation. Besides, my bladder infection was so bad I could hardly stand it. I had been to an urgent care, but still wasn't feeling any better. Having diabetes, always makes getting anything so much worse!

Most people can expect to be reprimanded for being rude, but what do you do when just the opposite happens? Okay, I never claimed to be perfect and my manners probably could use some polishing, but I have to admit I was utterly astonished for being harshly reprimanded for saying "thank-you" to my aunt at appropriate times when most people would say thank you. She declared “thank you” as a forbidden response to use ever again to her and made us feel awful for being polite. All I know is that I'm just not cut out to be a whipping board especially when I'm sick. I know I should have just left it alone when she kept at me. I shouldn’t have let being sick weaken my resolve. I know I was rude and disrespectful by finally blowing up and telling her "I AM DONE!" I was wrong to tell her that she ruined our vacation and it was unnecessary to tell her that she's a miserable bitch who isn't satisfied with anything. I can admit when I'm wrong when I am wrong, but I feel justified in standing up for my mother and me after being subjected to two weeks of non-stop agony. Maybe I could have approached it in a better way and saved the relationship, but I honestly felt at that point my aunt no longer cared about me.

I believe my aunt owes my mother and me a HUGE apology, but I can safely say that apology isn't something we'll ever get and that's okay. I know how stubborn my aunt is and I truly am okay with how things ended. I gave it my all, but my all wasn't good enough for her. I can accept that. Just like I can accept that in the long run it's entirely her loss and not ours. Sometimes you have to cut your losses and walk away from people you love because they’re toxic and will do nothing but bring you misery. Sure, it hurts, but time will heal the wound. Unfortunately, she decided against taking a plane home and we had n extremely unpleasant road trip back to North Carolina to drop her off. As I drove away from her house headed towards Florida it felt like the weight of the world had been lifted from my shoulders and it didn't matter that I still had 500 more miles to drive until I was home again and in my own bed so I could be sick in peace. And by the way...it took 3 more months of antibiotics and recuperation until my bladder infection was completely gone. Diabetes is a true bitch!

 

THE BEAST WITHIN ME

As this year winds down, it's time for me to reflect on the things that affect my life the most.  In the past several years, my health issues have worsened, but I think I've finally gotten to the point of being so sick and tired of being sick and tired that it's time for me to dig down deep and grab whatever stamina I have left and try to save this slowly sinking ship.  2014 has got to be a year of change! Great things have got to happen!

Here's a list of my current health problems:

1. Insulin dependent Type ll Diabetes - uncontrolled, of course!  No doctor in the past 11 years

since I was diagnosed has been able to get my A1C in a normal range.  Trust me, EVERYTHING has been tried and it remains a mystery as to why my diabetes is so tenacious.  I wonder if it might have a genetic factor to it since my paternal grandmother had the same type of tenacity with treating her diabetes.  As an added bonus of my uncontrolled diabetes I developed diabetic neuropathy in my feet.  The burning sensation and stabbing pain is so bad at times it makes me want to cry.  Standing on my feet during these bouts is challenging and very painful.  Recently, I was put on Lyrica and that initially helped with easing the neuropathic pain in my feet and also with the "all over" pain I experience from fibromyalgia I was diagnosed as having about a decade ago.  My other diabetic related health problem is gastroparesis. Gastroparesis is another fun diabetic complication!  Food sits undigested in my stomach for long periods of time due to damaged nerves in my stomach.  It's hard to describe how good food tastes when it goes down and how putrid it is after sitting in my stomach for a day or so.  This condition causes pain in my upper gastric tract.  Needless to say, I eat A LOT of cottage cheese and applesauce which is easy to digest.  I do feel thankful that I haven't developed anything more serious as a result of my uncontrolled diabetes and hope my upcoming endocrinologist appointment will be a start to finding a solution to these problems. 

 

2. Pain - I'm lumping all my various spinal related issues into one large category called "PAIN".   In 2003, I had 2 disks in my neck fused.  At that time, I was told I had the neck of a 94 year old woman and was told I had several things going on with my back and neck.  After that surgery, I swore I'd never have another surgery because the recovery was so difficult.  "Never" lasted 9 years.  By the time I had my second neck surgery, I couldn't raise my head to eye level without it causing my arms to go completely numb.  It was next to impossible to function without the use of my arms and I knew the longer I put off surgery the more permanent the nerve damage was going to be, so it was back to the neurosurgeon to have 2 more disks fused.  From September 2012 to June 2013, a nine month period I had 3 back surgeries.  My neurosurgeon claims there isn't anything else he can do for me, so basically, I'm supposed to just grin and bear it but grinning and bearing it consists of days where I can barely walk or stand up straight due to the intense pain.  I have severe headaches from the muscles in my neck and back tightening and causing horrific muscle spasms, nausea and blurred vision.  I know I need to go get a second opinion, but I'm really afraid to do that.  I keep asking myself what I'm afraid of and I don't know if it's that someone will agree that there's nothing else that can be done for me or if someone will say I need more surgery.  Of course, I see a pain management specialist, but all that means is getting combos of potent narcotics to take.  I so hate doing that, but am forced to take the pain meds when I can't function any other way.  In 2009, I went off ALL my pain meds cold turkey because I wasn't getting the relief from them I should have been getting.  It was insane to keep filling my body with meds that were doing more harm than good.  Withdrawal took about a month of pure hell. Now 4 years later, I'm right back there again and the doctor wants to try me on what I call the "Dear Jesus" patch (Duragesic)  or Methadone because everything else I take or have taken just doesn't work.   I'm not sure how I feel about taking this next step.  I'll mull it over in the next couple of weeks before my next appointment with him and make some sort of decision. 

3.  Autoimmune hepatitis - The 3 most common autoimmune diseases are lupus, rheumatoid arthritis and Crohn's disease.  Apparently my body has decided it doesn't like my liver anymore.  Isn't that special?  Too bad it didn't decide to dislike the fat on my stomach and hips instead!  After having a complete work up (CT of the abdomen, abdominal ultrasound, labwork, etc.) followed by a liver biopsy, my doctor thought it was best that I go to Oschner's Clinic in New Orleans.  It's the closest transplant facility to where I live.  He felt it was a good idea for me to get in their system in case at some future date I need their services.  The following is a short rundown on what an autoimmune disease is if you're not familiar with it.

Our bodies have an immune system, which is a complex network of special cells and organs that defends the body from germs and other foreign invaders. At the core of the immune system is the ability to tell the difference between self and nonself: what's you and what's foreign. A flaw can make the body unable to tell the difference between self and nonself. When this happens, the body makes autoantibodies that attack normal cells by mistake. At the same time special cells called regulatory T cells fail to do their job of keeping the immune system in line. The result is a misguided attack on your own body. This causes the damage we know as autoimmune disease. The body parts that are affected depend on the type of autoimmune disease.

4. Sleep apnea -  Controlled with the use of a CPAP machine. This one I got scared into doing because my O2 stats had dropped to 73% while sleeping (anything under 90% is considered respiratory distress) and I had stopped breathing over 150 times per hour determined by a sleep study, but the good news was that I had also started breathing again over 150 times.  When the doctor reviewed the results of my sleep study, he was amazed that I hadn't had a stroke or a heart attack in my sleep.  That night I started using my CPAP machine and have used it every night since then.  I am a believer!

5. All the other "lesser" stuff - high blood pressure (controlled by meds), high cholesterol (controlled by meds), Vitamin D deficiency (in the process of being controlled by meds), GERD (controlled by meds), chronic insomnia (uncontrolled, but I do take Trazodone and it works sometimes), adult onset asthma (controlled by meds PRN)  I'm sure I've missed something, but quite frankly, my dear...I don't give a damn right now!  I'm off to take a nap because all of a sudden I desperately need one.

Update 2/19/14: I've been on 2 more rounds of 3 months of Vitamin D therapy but my lab values refuse to improve.  I have an appointment with an endocrinologist to address that and my diabetes.  I think I'm falling apart!

6. Depression and anxiety - This is something I've been in denial about for such a long time, but it's the silent, dark horse I ride.  I isolate myself so I don't have to be around people because I don't want them to see me suffer, but isolating myself is the worse thing I can do.  I know depression makes all ailments feel worse, but to treat it means taking more drugs and many of those drugs cause weigh gain and any weight gain makes my diabetes worse.  It's a vicious circle that seems to have no jumping off point.  I no longer know how to help myself.  At this point I don't know if there is any real help.

GIVE ME AN "F"

Over the past month or so I've tried very hard to focus my mind on other things other than my pain in my right arm. I've played poker, posted new entries on my blog, removed wallpaper and painted the bathroom and participated in life as normally as I possibly can. I've been to the doctor twice. The first time I was told I had tendonitis obviously, from all the tennis I play and was given Motrin to take for 10 days. Okay, when that didn't do the trick, I reluctantly went back. This time I was given an order for a x-ray of my left thumb (I have a small lump at the base of my thumb)and an order for physical therapy. The pain had increased and radiates through my entire arm and goes into my shoulder blade causing muscle spasms. I really need to give up playing tennis! I was also given a prescription for steroids to take.

Anyone with diabetes knows that steroids and diabetes does not mix well. After getting the Rx filled, I've decided not to take the steroids. In the past, the benefits gained from taking steroids haven't been enough to merit struggling with the elevated blood sugar it causes. I did, however have the x-ray done and attempted to have physical therapy set up only to find out that my insurance doesn't cover physical therapy. Why doesn't this surprise me?

I'm not too upset over the physical therapy issue because each time I exert my arm, it only ends up hurting worse. I have found that if I move my head slightly to left and rest my arm on top of my head, the pain goes away. Perhaps I can duck tape my head and arm in that position and then all I'll have is just the normal pain I suffer from daily. Experimenting with repositioning my head and arm leads me to believe that the true problem comes from my neck and/or back. And since I refuse to have anymore surgery to that area of my body, the name of the game is grin and bear it! That game I'm much better at than playing tennis!

Gratitude statement: I'm thankful for being able to grin and bear it rather than letting out the primal scream I feel slowly brewing.

MEDICATION TIME

I know sometimes I ramble on about being alone when in reality, I'm exactly where I want to be. I think I have moments of weakness when I actually do miss having a significant other and then something always knocks me back into reality. Usually, it's someone I know going through some relationship drama that makes me want to vomit and run for cover. At times like those, I feel thankful that my life is without that kind of drama. Unfortunately, my life has other areas that take up the slack. I just read an article today about diabetes and stress. HA! And people think carbs are what kill... First and foremost on my bitchfest for today is my elderly mother. I call her "mother" for lack of anything else to call her. You see, this woman who looks like my mother really isn't my mother at all. The aliens must have abducted her about 5 years ago and put a empty pod in her place. The empty pod doesn't like to do the things my mother used to like to do. In fact, the only activity this pod likes is sitting in the dark and rocking in the rocking chair. 

The pod won't bathe, brush her teeth or eat properly, but when asked about depression, "it" responds that everything is fine. I'm at the point of pulling my hair out because I don't know what to do to help change things. All this stress is effecting my health, but short of installing an on/off switch in my head, I don't know how to just accept the fact that there isn't anything I can do. Believe me, over the past 5 years, I have tried everything known to man to interest the pod in anything and any suggestion I make is met with instant resistence. I even went as far as one day saying to the pod, "Okay we're even!" (I felt she was paying me back for me being such a rebellious shit in my younger years) The pod knew what I meant without any further explanation and it laughed at my frustration! The second bug that has crawled up my ass are people who disappoint me...I know,BOO HOO! I figure at this stage of life meaning "adulthood", people should follow through on things they say they are going to do or else they need to just keep their well-meaning pieholes closed. 

I'm tired of doing things for everyone and in turn, feeling like I'm used and unappreciated. Yes, I know I allow this and need to be a little less giving, but to be honest with you, I don't know how to be any other way. And I really don't think it's me who has the problem! Being able to give to others is an attribute, but the longer I live, the more I see it's an attribute that's taken advantage of by leeches, emotional vampires and other bottom feeders. At this moment I just want to tell everyone to "suck my ass dry!" I NEED DRUGS! NOW! And the sad part is, I'll take a deep breath or twenty and just go about my business. 

Gratitude statement: I'm grateful for being able to tell those around me, the givers of stress to fuck off ocassionally. 

THE MAGIC WAND - SAVELLA

With diabetes, can come many complications. One of the more aggravating complications that has been bothering me for several years is diabetic neuropathy in my feet. For anyone not familiar with how this condition manifests itself, I can liken it to someone taking a lit cigarette and touching it all over my feet. When I do have any sensation in my feet, my nerves seem to be in overdrive. When the feeling subsides, my feet are numb. There's no middle ground and of the two, I prefer numbness!

I've tried many medications to help relieve my diabetic neuropathy. Not long after I was first diagnosed with diabetes about 8 years ago, I was given Neurontin (gabapentin). I saw no improvement even with high doses of the drug, but my stomach bothered me and my head hurt the whole time I took it. The same held true for Lyrica. I tried it twice and the whole time I took Lyrica I had a dull ache at the base of my head, my digestive tract hated the drug and my vision was blurry. Topamax just dulled my whole brain, but not my feet. I became forgetful and my stomach bothered me the whole time I took it. Recently I tried Savella, a brand new drug usually prescribed for fibromyalgia. The doctor gave me a starter pack as a free sample.

Savella is a medication that a person has to gradually increase over a two week period to reach the optimal dosage. By the end of the first week, my mind was racing all the time, I couldn't sleep at all (I do very little of that anyway) and things that happened 40 years ago were bothering me like they had just happened yesterday. If I had continued on taking Savella, they would have had to put me in a rubber room by the end of the second week. When I discontinued taking it, the drug took about 3 days to get completely out of my system.

After becoming discouraged and frustrated, I listened to the suggestion of a good friend who suggested that I try taking B-complex vitamins once a day. Although the burning sensation isn't completely gone, I have to admit that it has greatly improved. Mind over matter? Who knows? What I do know is that each person is an individual with a different body chemistry than anyone else. How can doctors prescribe a drug and expect it to work for everyone if no two people are genetically identical? Doesn't it make more sense to take something that your body may be deficient in due to the chronic illness? I guess I'm giving a little bit of a holistic approach to my medical problems to see where it leads me. What have I got to lose? The same old same old seems to be zapping my strength and sucking the life out of me slowly.

Gratitude statement: I'm thankful for common sense, logic and the strength to follow my own path.